cmzaha,Since I have continuously bothered everyone with my concerns over my daughter I am happy to say is home again and hopefully to stay now. She did have another short round in the hospital a week or so ago with another surgery but it appears they have finally eradicated the Sepsis. I am still very guarded with my excitement but she had an extensive blood panel done yesterday another MRI and an X-ray with no active infection showing up. It did come up with her C-protein levels out of site which the doctor believes is due to the long-term infection kicking up her RA. We are hoping only two months of an uber biological med with get her numbers back to normal levels since I just cannot afford the medicine for longer. I looked back she had fought this infection since last August ending up in the hospital in Nov.
God sure had other plans for us when we originally sold our house and planned our move. Without the sale of the two houses Cheryl simply would not be alive today due to our lousy medical system. And remember they have insurance... Very sad
My daughter is 44 and the Social Worker tries, but we just keep hitting block walls because they have insurance.cmzaha,
find out who the manufacturer and name of the "uber biological med" look up the phone number and ask the receptionist for the department that helps folks who can't afford to pay for this product. The hospital where you were at should have sent someone from social services to see your daughter and her family and talked with you. Many, many manufacturers give away or send the product to patients for a small fee if they need financial help. If you don't mind me asking how old is your daughter?
This is frightening and maddening all at the same time! Cheryl remains in my prayers for a miracle.My daughter is 44 and the Social Worker tries, but we just keep hitting block walls because they have insurance.
New update, she had surgery again yesterday. Now she is fighting a Staph infection and her Sjorjens is out of control which is destroying the sinus patches so they had to be repaired along with cleaning out staph infections on each side of her nasal.
My new house money is in serious jeopardy. But my well is done, my house now has water!! We just need a garage. Our biggest fright is running out of money to care for her at this point. Anyone that thinks a million dollars is a lot of money, think twice. When you cannot turn off the faucet it goes frighteningly fast. I have lost count but I think she is up to 16 surgeries now.
All my prayers to you, Cheryl, and the rest of your support system! May G-d keep His hand over you all.It's back...Cheryl's dentist thought he found the actual source of her infection. He found infection under extensive hardware in her bottom jaw 7 or 8 implants. She went into surgery to remove all the hardware clean the infection, and have plasma bone grafting and a prothesis added to try to keep her bone from further deterioration. Her surgeon also checked her sinus area and found infection had pierced the patch and she was leaking cerebral fluid again. So that all had to be fixed. He cultured the area and it did not show Sepsis, she had been fighting Staph the last 2 or 3 weeks. They are now doing UV light treatments. Sadly her blood work numbers crashed so further testing was incurred, showing Sepsis back in her blood. So now she is back to having her blood washed and in the hospital until at least next Friday. It is getting really scary as we are quickly running out of money to care for her, let alone finish our house and move or take care of us.
Enter your email address to join: